Thursday, July 17, 2008
Thank You, Bethany!!!
I want to thank my very dear friend, Bethany for doing my background and header for me! I am so bad at this sort of stuff! She used a kit I designed for my shop, but she did all the work and even emailed me exactly what I needed to put in the box! She is such a wonderful friend! Thanks Beth! I love how it turned out!
Tuesday, July 15, 2008
A beautiful blog
It is 12:30 in the morning, John is down in Alamo for work. The other kids are asleep and it is very quiet here. I have been reading a blog that my friend Bethany posted about on her blog. I have been crying for a good 30 minutes! I just wanted to share this, but be warned, it is beautiful, heart wrenching and life changing, all at once. This woman is amazing for being so open and letting everyone out there into what I think would be any mother's nightmare. She is truly inspiring.
http://adailyscoop.blogspot.com/search?updated-min=2008-01-01T00%3A00%3A00-08%3A00&updated-max=2009-01-01T00%3A00%3A00-08%3A00&max-results=50
http://adailyscoop.blogspot.com/search?updated-min=2008-01-01T00%3A00%3A00-08%3A00&updated-max=2009-01-01T00%3A00%3A00-08%3A00&max-results=50
Sunday, July 13, 2008
Sam's Blog
Although my other kids may not find this the most fair, I have turned our homeschool blog into a blog for Sam. I want a way to document things, but also a way to share with everything how he is doing. This blog will continue to be the family blog, but if you are wanting an update on Sam, everything will be in his blog! The link is at the top of the list! My hope is that this will be a way for everyone to feel connected and informed during this whole thing! I've already posted there, so check it out!
Thursday, July 10, 2008
A Diagnosis for Sam
Well, today has been quite the day, but I wanted to post here the latest on what we've learned for Sam. Information is always a good thing (I think) and so I am grateful to know what we know. I'm a little overwhelmed and emotional, but there are many reasons for this.
Several weeks ago, Sam was hospitalized for viral pneumonia. This was nothing new for us, and as crazy as it sounds, everything seemed very "routine". While we were there, the doctor ordered genetic testing. I think she was hoping to find a link or reason to all of the challenges that Sam has had over the first years of his life. I didn't think much of it. Honestly, I feel like we've been through so many, what's a few more? Right?
Well, we got the results today from our pediatrician. Because of our move, she had to tell us over the phone. Apparently Sam was born with 2 extra chromosomes or 48xxyy syndrome. It's very rare and only affects 1 in every 17,000 boys. In fact, I read that many parents who learn of this during pregnancy through an amnio, abort. That makes me very sad. Not that I want to debate this issue, but I look at the joy that Sam brings me every day, and his incredible capacity to love, that I couldn't imagine not having that.
I will post a link at the bottom to a website we found about this condition. It explains it better than I can, but something I want to say, before anyone reads it. Sam is who he is and no diagnosis will change that. I refuse to allow myself to be freaked out about the "what if's" and "what won't be's". He is a charming child that loves everyone he meets. He is happy and loving. I am grateful for who he is and what he has brought into my life. I firmly believe that Sam has this challenge for a reason and no statistic, no symptom will change who he is. I'm thankful for answers, because it gives us a direction and the ability to find a support group, but I will not let this "name" define my son. And today, I feel overwhelmed a bit, by the future and the work that will be involved, but to be honest, I feel that on most days! But, I am grateful for the challenge, I'm grateful for the blessing it is to be his mother and I will do everything I can to give him the very best life possible! The most valuable lesson I have learned since Sam entered our life, is that there are no guarantees. We only have today and we only have what we can see and touch and feel in the here and now. So we need to enjoy it and not worry about what the future brings. I am also grateful to know that this life is not the end, and who Sam is now, in this life, is merely a challenge he must face. Underneath it all, is a very sweet and special spirit, who will be my child forever. And for that, I am blessed.
Here is the link: http://www.xxyysyndrome.org/
Several weeks ago, Sam was hospitalized for viral pneumonia. This was nothing new for us, and as crazy as it sounds, everything seemed very "routine". While we were there, the doctor ordered genetic testing. I think she was hoping to find a link or reason to all of the challenges that Sam has had over the first years of his life. I didn't think much of it. Honestly, I feel like we've been through so many, what's a few more? Right?
Well, we got the results today from our pediatrician. Because of our move, she had to tell us over the phone. Apparently Sam was born with 2 extra chromosomes or 48xxyy syndrome. It's very rare and only affects 1 in every 17,000 boys. In fact, I read that many parents who learn of this during pregnancy through an amnio, abort. That makes me very sad. Not that I want to debate this issue, but I look at the joy that Sam brings me every day, and his incredible capacity to love, that I couldn't imagine not having that.
I will post a link at the bottom to a website we found about this condition. It explains it better than I can, but something I want to say, before anyone reads it. Sam is who he is and no diagnosis will change that. I refuse to allow myself to be freaked out about the "what if's" and "what won't be's". He is a charming child that loves everyone he meets. He is happy and loving. I am grateful for who he is and what he has brought into my life. I firmly believe that Sam has this challenge for a reason and no statistic, no symptom will change who he is. I'm thankful for answers, because it gives us a direction and the ability to find a support group, but I will not let this "name" define my son. And today, I feel overwhelmed a bit, by the future and the work that will be involved, but to be honest, I feel that on most days! But, I am grateful for the challenge, I'm grateful for the blessing it is to be his mother and I will do everything I can to give him the very best life possible! The most valuable lesson I have learned since Sam entered our life, is that there are no guarantees. We only have today and we only have what we can see and touch and feel in the here and now. So we need to enjoy it and not worry about what the future brings. I am also grateful to know that this life is not the end, and who Sam is now, in this life, is merely a challenge he must face. Underneath it all, is a very sweet and special spirit, who will be my child forever. And for that, I am blessed.
Here is the link: http://www.xxyysyndrome.org/
Tuesday, July 8, 2008
I have very exciting news!!!
And no, we aren't expecting a baby! LOL!
I just got my first job as a designer at a real online store! I'm so excited. I've only got two products in so far, but more will be coming. (It's a lot of work to organize and upload, etc.)
Anyway, click HERE for the link and see my new store!!!
I just got my first job as a designer at a real online store! I'm so excited. I've only got two products in so far, but more will be coming. (It's a lot of work to organize and upload, etc.)
Anyway, click HERE for the link and see my new store!!!
Subscribe to:
Posts (Atom)